Am a new member to this wonderful site, am amazed with the information that is available.
I have a daughter who is three years and six months old, who is a has Sickle cell disease. Last year she suffered a CVA(Stroke) which affected her lower limbs and upto now she is not able to walk. Most Doctors say the there is a high chance of it happening again if she not put on a blood transfusion program to suppress the production of sickle cell blood.
What i would like to know is if there is alternative bloodless treatment, especially for this case. Her latest Hb count is 10.5 which am told should not go beyond that right now. She is on folic acid and Hydroxurea which she takes once daily. She also get an injection for benzathine once a month. Doctors have also recommended she goes for MRI again and go for a brain scan to check the velocity of blood in the affected area.
Guys am a lay man in the medical field thats the much info i can give, i would appreciate a response from anyone with an idea of what we can do to help her.