Our family are Jehovah's Witnesses. My 16 year old daughter was diagnosed with chronic ITP October 2008 after a couple of low platelet blood tests, 40 and then 38. In 2006 she had a platelet count of 86 after a virus, but it went up to 150 a couple of weeks later.She has had tests for Lupus,Aids, arthritis etc, all negative.
Since the diagnoses in Oct 2008 her platelets have gone up and down and are presently 18, a drop from 31 due to a virus she caught a few weeks ago.Apart from the platelet count ,she gets a few purple dots on her arms and legs and a slight rash now and then and occassional gum bleeding when brushing her teeth,she has had no other signs of bleeding.
My husband, daughter and I have been resisting the steriod treatment and splenectomy the specialist has been recommending since our first visit last year, believing it to be too aggressive a treatment for a count in the 30's. But with her latest drop we agreed to the steriod treatment. I must say, on my part reluctantly, as it seems to have only a 30% chance of success and may put us on the path to splenectomy whether we like it or not.
Even though I told the specialist I am sure this all started after a virus, she says my daughter has the adult form of ITP which usually does not go away by itself. I have read that adult ITP starts insidiously, but the childhood ITP after a virus ,then can become chronic and can disappear even years afterwards with no treatment.
I have read about tranexamic acid as another possible treatment.
I would appreciate any advice please.