My name is somer. My daughter is 5 years old and just to give you a little background, she was born with several major congenital heart defects including hypoplastic right heart syndrome. 1st open heart surgery was 3 days old....she's had 4 now(so far).- All done bloodless in portland,OR.
We just found out that she has IgG/IgA deficiency. The doctors want to start infusions of human Immuno globulins. As Jehovah's witnesses, we have come across the blood issue many times with her medical history. We have really only come across the issue of whole blood though, so that is a black and white decision for us. There is no grey area when it comes to whole blood. When it comes to fractions however, I'm feeling uneasy. In the past we did give her EPO(erithropoatin). I was wondering how the fraction of EPO compares to the fraction of IgG. I hope I'm making sence here, I just want to make sure that this IVIG is a SMALL fraction. It will need to be given to her intravenously every 3 weeks for the rest of her life. If we decide not to do this they said that since her liver is already not doing so good because of her heart, it will likely cause a lot more problems in the future. Thanks for listening